Evie, 7, youngest person to get a hearing dog

Deaf seven-year-old Evie Crook has a new best friend – a specially trained hearing dog.

Evie is the youngest person to get an assistance dog and her confidence is starting to skyrocket. Since getting Gem she is sleeping in her own bed for the first time and is much more chatty, her parents say. “I love Gem more than 10 million bags of sugar!,” the youngster told Sky News. Evie is severely deaf, and is one of 12 children taking part in a trial organised by the Hearing Dogs for Deaf People charity. Previously only deaf people over the age of 18 have been allowed to work with hearing dogs.

Evie, who lives in Derbyshire with mum Becky, dad Dave, and big sister Maddy, is the only one in her family with hearing difficulties. It is a condition that can sometimes leave her feeling isolated, and was leading to more serious behavioural problems. She suffered sleep traumas and would often wander off when in public. But her family say that since Evie was paired up with Gem all their lives have changed immeasurably. Becky says: “Gem trots round everywhere after Evie, it’s almost like she’s checking where she’s going, which I know Evie is finding reassuring.”

Read full article on Sky News.

Ex-footballer campaigns to change attitudes to deafness

Pompey football legend Alan Knight spent years struggling to hear conversations. But now hearing aids have transformed his life and he is campaigning to change attitudes to deafness.

‘That John Westwood has got a lot to answer for,’ smiles Knight, recalling the hundreds of times he would be subjected to the loud ringing bell of the club’s noisiest supporter.

But losing his hearing was devastating for the former goalkeeper. He felt cut off, unable to join in conversations and constantly had to ask people to repeat themselves.

Alan, now 48, was driving on a motorway in America three years ago when he first noticed problems in his left ear.

‘It popped like when you’re flying on a plane and then there was just this hissing sort of sound,’ he recalls.

When the problem was still there a few days later, Alan, who was in the States working as a coach for Dallas in the US football league, went to see his team’s doctor.

He was told the most likely cause was an ear infection and given a three-day course of antibiotics.

But three weeks later, at the end of the American football season, he was back in England and still experiencing the problem.

‘I tried all sorts of ear wax controlling products and things. I went to see the doctor several times he told me my ears might be blocked,’ he says.

Although Alan didn’t know it, his ears were deteriorating fast. He began to struggle with a 75 per cent loss of hearing in his left ear and a reduced ability to pick up high frequencies in the other.

As a result, his social life took a huge knock.

‘At first it became a bit of an ongoing joke with people around me saying I had gone deaf. I was relatively young at the time of it happening, in my mid-40s, so obviously I wasn’t aware that was actually what was going on.

‘After a while it was wearing thin with people that I was constantly asking them to repeat themselves over and over,’ says Alan.
‘In noisy areas or rooms I just couldn’t hear people. I felt excluded and I became a bit withdrawn.’

Six months later, when his ears had still not improved, Alan went back to his GP and was put on a waiting list to see an ear, nose and throat specialist at Queen Alexandra Hospital in Cosham.

When he got his appointment a few months later, he was given an MRI scan and received a huge blow.

‘The consultant told me my nerve endings, the hairs on my inner ear, were dead,’ he says.

He had suffered permanent hearing loss – and even worse, he was told it could have been completely avoidable.

Alan had suffered Sudden Sensorineural Hearing Loss (SSHL) in his left ear, treatable if caught in the first two weeks.

‘The consultant said if it had been picked up straight away, I could have been given steroids which may have helped save my hearing,’ Alan says.

‘It made me very angry, the idea that I had missed the one chance I had to hold on to my hearing.’

SSHL occurs when the hair cells in the inner ear, known as cochlea, die. But the causes of the condition, which affects around 6,000 people a year, are known in only around 15 per cent of cases.

Alan looks back and wonders if his long football career could have been partly to blame. He says: ‘I feel some of it may have been caused through playing football, getting kicks to the head and loud crowds could have damaged my ears over time.’

Whatever the cause, Alan’s life has been changed forever. But he now wants to help change social attitudes towards deafness. By telling his story, he hopes to tackle what he sees as an ongoing stigma and ignorance surrounding deafness.

‘I think there is a stigma about having impaired hearing,’ he says.
‘It seems these days, no-one has a problem wearing glasses. When people go to the opticians and buy designer glasses, it’s seen as a cool thing. But wearing a hearing aid seems to just be associated with older people in their 70s or 80s.

‘People will go and have their eyes tested every couple of years, I think people should go and get their ears tested as well.’

In May, Alan went to hearing specialists Amplifon in Portsmouth, where he was fitted with two digital hearing aids, including a small one in his right ear programmed to amplify only high-frequency sounds.
The cost was around £3,500 for the pair, but since each is tuned to match the precise pattern of his hearing loss, Alan says he has regained his confidence.

‘When I got an NHS hearing aid, I was amazed how much it changed things. It improved my hearing a great deal. But there were a few problems, I didn’t clean it properly and got a bad ear infection from not taking it out often enough.

‘At first I was very cautious about having to wear hearing aids, but they are much more cosmetically favourable these days.

‘In the end, I was not particularly bothered what it looked like, I just wanted to hear better.’

Looking back over the last three years since that day his ear popped on the freeway, Alan says: ‘It’s not a nice thing to happen, but it’s better now, I should have got it sorted sooner. Now I know there’s so much available out there in the way of hearing devices.’

He adds: ‘I know it sounds cheesy, but if I can get across to just one person who’s losing their hearing to go and get their ears checked and save their hearing, then I would be very happy.’

Source: The Deaf Blog and Portsmouth.co.uk

This hearing aid or that one?

Picture the scene: You are in an audiologists office, you’ve had a hearing test and you need to decide which hearing aid you are going to buy. You’ve saved up for a long time to get some money together for an aid because you really need to hear better. It’s a lot of money. It’s a big decision and you can’t afford to not make the right one.

Based on your test results your audiologist suggests a few different aids that would suit you. The three aids being recommended have all had really positive feedback from previous customers.

You’ve got a lot of aids to pick from but three are being suggested. One’s cheap and well within your budget, one is just under your budget and one is slightly over. Which do you go for? Do you stretch your budget that little bit? How much better would you hear if you stretched your budget?

The audiologist has already warned you that it takes time to get used to new hearing aids, your brain needs to adjust to the new sounds and you’re a first time wearer so it’s a big deal. You get a three month trial period for your new aids after you’ve paid for them.

Which aids are you gonna pick?

Now you’re faced with an impossible choice. You ask the audiologist how much better you would hear if you bought the most expensive one and all he can say is, “well, it’s got a better noise-reduction algorithm and more channels so it’s going to be better”. Yes, but how much better? Is it worth my money better?

So, you decide to pick the cheapest aid because money is tight and there’s a bunch of other stuff you could be spending it on. Add to that the fact that you are a bit uneasy about handing over a large sum of money for something you are really not sure about.

You go through your trial period and you are reasonably happy with the results, you hear a lot more than you used to. But you have problems getting used to some sounds and some things sound very unusual, there’s also some stuff you still can’t hear as well as you would like.

Do you trade the aids back in and go for the more expensive ones? How much better would they be?

Cheaper hearing aid prices do not lead to more sales

I read a couple of very interesting articles on Hearing Review today: It’s Not Immoral to Increase Hearing Aid Prices in an Inelastic Market and Seven Rules for Thinking About Hearing Aid Pricing.

The first article talks about how a reduction in hearing aid prices does not lead to more people buying them, or, to quote directly from the article, “This means that changes in price will have little impact relative to the number of potential hearing aid users who enter your practice“. So, when we decide we want/need a hearing aid we are going to see an audiologist regardless of their prices. This article is purely from a dispensers point of view and is focused on profit margins, which is fair enough, businesses are run to make a profit after all.

Hearing aids may be an inelastic according to the studies mentioned in the article (inelastic just means prices aren’t affecting sales) but the price difference being quoted are a few hundred dollars taken off a $3000 hearing aid. They are saying that if they reduce the price from $3000 to $2700 then the sales don’t shoot up – no surprise at all because what was a hugely expensive purchase is still a hugely expensive purchase.

What I don’t like about this article is the assumption that it is OK to charge top-dollar to the people who have come into a practice. Someone attending a practice has decided that their hearing loss is affecting their quality of life enough to get something done about it – increasing the price of their purchase just because your patient numbers are low is not doing the patients you do have any favours at all.

Whereas differing hearing aid prices may not change the number of patients coming into practices it certainly will be effecting the look of total shock on the faces of those patients who have when they are told how much it will cost for them to hear.

The second article follows the same lines and talks about how practices should stress their value to patients in terms of quality hearing aids and services rather than driving down prices. I’ve written before about how we wrongly equate the quality of something to its price. The important thing to remember is that most of what you are paying for when buying a hearing aid is the service that comes with it, the actual hearing aid itself doesn’t cost much to produce. When comparing the price and value of one practice against the other you are really comparing the audiologists and how much their time is worth, not the hearing aids themselves.

I just cannot see how significantly lowering the prices of hearing aids to an affordable level would not increase sales. It may not increase profits but it would certainly increase sales and that may well be the problem!

Hearing Aid Market – testing over, going live tomorrow

Thank you very, very much to those of you who took the time to check out the Market site and send some feedback. Your comments have all helped to make a better site – I really appreciate you taking the time.

Testing is now over and I plan to make Hearing Aid market available to everyone from tomorrow. Any hearing aids that were listed up until now will be deleted but the users who signed up will remain.

Cheers,

Steve.

Christmas gift ideas for the hard of hearing

Dehumidifier pot

OK, it’s not going to be the most exciting present under the tree this year but, for the hearing aid wearer in your life, it could be one of the most useful.
Dehumidifier pots remove moisture from hearing aids, this helps prolong the life of the aid and keeps it functioning properly – and aid that it regularly popped into one of these will work longer and better.

Amazon have some of these but you can get them from your local audiologist or hearing aid seller as well.

T-Shirts

Sarah, who writes the SpeakUpLibrarian blog, has a great range of t-shirts in her online shop. She has some mugs on there too, all with fun designs for the hard of hearing.

Lip Reader

The Lip Reader novel features a colorful cast of characters—an unkempt uncle living in a school bus; a grandfather who preaches in a rundown church; a grandmother born deaf; an aunt fluent in sign language but lacking in social graces; and Sapphie, who finds courage and hope despite mother Rea’s unthinkable act of betrayal.

It was the winner of the 2008 Top Prize in Fiction at the Heart of America Christian Writers Awards.

You can purchase it in hardcopy or as an eBook from here.

A hearing test

Now, this could quite easily be the most unpopular present ever given. But for someone who is having trouble hearing and won’t go and get it checked out, it’s a great present. It’s some tough love. You’ll probably get stared at over the turkey and shouted at after a few glasses of wine in the evening but if it gives them the kick to go and see an audiologist it’ll be the best present they’ve had in a long time.

Would you like to write for this website?

How do you fancy getting something published on this site?

Over the years many people have left some great comments on here, there’s been some great discussions. A lot of people have taken the time to leave comments about subjects that they care about.

I get a lot of emails as well – from people who are looking for some info, want to talk about hearing aid stuff or just want to share their story.

I’m opening this to anyone: bloggers, audiologists, aid sellers, the deaf, the hard of hearing, the hearing, you, your dog, the world. Everyone is welcome, whether you’ve emailed me or commented before, have another blog or have never written anything on the Internet before, it doesn’t matter.

If you have something to say about hearing loss, hearing aids or anything around those subjects and you think you’d like to post it up on this site then I’d love to hear from you. If you want to promote your blog/product/service in your writing then that’s cool with me.

Hearing aids still considered an old people thing

Despite all the advances in hearing technology over the past few years, a survey conducted by the Phonak Hear the World initiative has found that people still associate hearing aids with old age more than any other accessory, including wheelchairs, glasses, canes and crutches. 4,405 people, aged from 14-65 in the United Kingdom, America, France, Germany, Switzerland and Italy were questioned. The top three reasons given for not wearing a hearing aid included not wanting to admit having hearing loss in public. Despite this, 93 percent responded that they would wear a hearing aid if it was necessary. “Hearing loss and the solutions available to treat it have long been misunderstood and the survey findings point to exactly that,” said Dr. Craig Kasper, chief audiology officer of Audio Hel Associates of Manhattan. “Hearing aids have come a long way and it is important to the well being of those with hearing loss that these misconceptions be addressed.”

Read on Audio Infos.

I don’t know what your features mean

I was reading a press release today for a new hearing aid from a well-know manufacturer. It struck me that despite reading the entire thing I had absolutely no idea whether this aid would be good for me. Would it be better than the one I have? How much better? I have no idea.

The new aid has features with impressive sounding names like (and I’m making these up as I don’t want to name the brand):

Spatial Sound Matrix +

Noise Wizard 2.0

OptaEnhance

Field Spot discovery

All this on the company’s website too. From their PR and website and can get the general idea that these features let me hear better in noise, they reduce feedback, better clarity, perfect localisation, etc, etc and so on. All hearing aids do these things.

As a customer, how do I decide if one manufacturer’s Spatial Sound Matrix + feature is better than another’s OptaEnhance feature?

I can’t. I have no idea and no information to go on. The only thing I can rely on is a recommendation from a vendor or audiologist, a recommendation from a friend or some info on the web. A vendor or audiologist will only recommend products that they supply. A friend’s recommendation might be worthless as their hearing loss is probably completely different to mine. There isn’t much on the web in terms of comparison between aids.

So all these cool sounding features mean nothing to me. They have no context and they don’t help me make a choice between brand X and brand Y. I want to be able to buy a TV instead.